Community

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Parts of this website have been translated automatically. Please do not be confused if you encounter poor wording or grammar mistakes. Please tell us about translation errors, so we can correct them! You don't need to write an email, there is a form which can be filled out quickly.

This website has been created to foster a global community of Short QT patients and families. Currently, there is no place to come together.

Do not hesitate to get in touch with us!

Email us at

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If you'd like to send us an encrypted e-mail, you can use Proton.me. All messages coming from an email-address hosted with Proton are automatically encrypted.

or use the contact form:

Twitter

https://twitter.com/shortqtsyndrome

Newsletter

There is an infrequent, rare newsletter. Not as rare as Short QT Syndrome, but still rare. You can sign up by clicking on the white button Subscribe. This is of course free of charge. You can unsubscribe any time. If you'd like your data to be completely purged from our database, please email us.

Internet Forum

You are welcome to our new forum! There is not much there, but you are welcome to start a thread in any language you'd like. I will answer!

Short QT Syndrome Forum
Short QT Syndrome - a rare arrhythmia

Gene-specific Communities

CACNA1C

Timothy Syndrome Alliance (TSA)
Learn about the cause and symptoms of Timothy Syndrome. We seek to raise awareness, fund more research, and improve diagnosis, treatment and care.

Survey